Usos y actitudes de los pacientes ostomizados en España (Estudio U&A en Ostomía)

  1. Alberto Lado Teso
  2. Mª José Fabeiro Mouriño
  3. Belén Bueno Cruz
  4. Mª Carmen Vázquez García
  5. Isabel Jiménez López
  6. Alejandra Mera Soto
Journal:
Metas de enfermería

ISSN: 1138-7262

Year of publication: 2019

Volume: 22

Issue: 4

Pages: 19-27

Type: Article

DOI: 10.35667/METASENF.2019.22.1003081409 DIALNET GOOGLE SCHOLAR

More publications in: Metas de enfermería

Abstract

Objectives: to understand the daily practice of those professionals who are ostomy experts in Spain. To explore the uses and attitudes of the ostomy patients and their quality of life (QoL). Method: a national retrospective study (U&A on Ostomy), with 148 participants who collected clinical data about ostomy patients. The study was open for the use of any marketed device. Professionals collected demographical data, characteristics of ostomy and device, the DET score for evaluating the peristomal skin (0-15), the mood of the patient (0-10), the Stoma-QoL scale (0-100), and changes of habits. There was also an assessment of the most highly valued characteristics of the device, care received and improvement suggestions by patients. Results: the study included 871 patients (64% male, 36% female; 57.5% with colostomy, 28.6% with ileostomy and 13.9% with urostomy; 68.5% were permanent and 31.5% temporary; 75% for neoplasia, 13.2% for inflammatory bowel disease, and 11.8% with undetermined causes). Pre-surgical markings were conducted and observed in 55.35% of cases. The mean DET score was 1.7±2.7 (range 0-13), overall satisfaction with the device was of 8.1±1.3 (range 1-10), and the Stoma-QoL score was 57.8±10.3 (range 11.5-100).The use of Coloplast devices was associated with a lower frequency of leaks (p< 0.036). Overall, 89% of patients attended regularly their appointments with the Ostomy Nurse, and their score for the care received was 9.4 (0-10). Conclusions: U&A in Ostomy is the first large-scale study evaluating the clinical reality of the ostomy patient in Spain. It describes the uses and patients attitudes towards their condition. The importance of pre-surgical marking was confirmed, as well as its impact on QoL.

Bibliographic References

  • Cobos Serrano JL y Grupo Coloplast Ostomy Forum. Libro Blanco de la Ostomía en España. Madrid: Coloplast Productos Médicos; 2018.
  • Werth SL, Schutte DL, Stommel M. Bridging the gap: perceived educational needs in the inpatient to home care setting for the person with a new ostomy. J Wound Ostomy Continence Nurs. 2014; 41(6):566-72.
  • Bona M, Pérez M, Serinanell MD, Vivancos H, Silva O, Salazar I, González C, Martín M. Estudio Impacto (1): Impacto del cuidado experto de Enfermería sobre el bienestar del paciente con ostomía. 11th Biennial Congress of European Council of Enterostomal Therapists (ECET). Bologna, June 12th to 15th, 2011.
  • Blasco P, González AM, Martínez MC, Calvo R, Varas Y, Vázquez C, Rodríguez E, Martínez MD. Estudio Impacto (2): Perfil de los pacientes ostomizados. 11th Biennial Congress of European Council of Enterostomal Therapists (ECET). Bologna, June 12th to 15th, 2011.
  • García L, González M, Pérez C, Jonte JC, García V, Iborra L, Prieto A, Menéndez I, Juan C, Salvador F. Estudio Impacto (4): Impacto del cuidado experto de Enfermería en el estado de la piel periestomal. 11th Biennial Congress of European Council of Enterostomal Therapists (ECET). Bologna, June 12th to 15th, 2011.
  • Lado del Teso A, Campillo Martínez J, Sánchez de la Blanca MI, Pérez López C, Jorreto Herrera OL, Varas Reviejo Y. Estudio Stoma Life: Calidad de vida en los pacientes ostomizados un año después de la cirugía. Rev Paraninfo Digital. [internet] 2016 [citado 8 abr 2019]; 23. Disponible en: http://www.index-f.com/para/n23/001.php
  • García Manzanares ME, Montesinos Gálvez AC, de la Quintana Jiménez P, Vaquer Casas G. Afectación psicológica y calidad de vida del paciente ostomizado temporal y definitivo. Estudio Stoma Feeling. Metas Enferm. 2015/2016; 18(10):24-31.
  • Coca-Pereira C, Fernández de Larrinoa Arcal I, Serrano Gómez R. Complicaciones tempranas en pacientes portadores de ostomías con y sin atención de Enfermería especializada en ostomías. Metas Enferm. 2014; 17(1):23-31.
  • Millán M, Tegido M, Biondo S, García-Granero E. Preoperative stoma siting and education by stomatherapists of colorectal cancer patients: a descriptive study in twelve Spanish colorectal surgical units. Colorectal Dis. 2010; 12(7 Online):e88-92.
  • Bass EM, Del Pino A, Tan A, Pearl RK, Orsay CP, Abcarian H. Does preoperative stoma marking and education by the enterostomal therapist affect outcome? Dis Colon Rectum. 1997; 40(4):440-2.
  • Lancharro M, Cano I, Bru E, Navalón C, Giménez M, Aznar S, et al. M & Q Study (Stoma Marking & Quality of Life): Influence of marking the stoma in the patient evaluation of the ostomy appliance. 11th Biennial Congress of European Council of Enterostomal Therapists (ECET). Bologna, June 12th to 15th, 2011.
  • Caparrós R, Real A, Jiménez J, García R, Sebio P, Lugulde S, et al. M & Q Study (Stoma Marking & Quality of Life): Influence of marking the stoma on the quality of life and the peristomal skin condition of the ostomy patients. 11th Biennial Congress of European Council of Enterostomal Therapists (ECET). Bologna, June 12th to 15th, 2011.
  • Ratliff CR. Factors related to ostomy leakage in the community setting. J Wound Ostomy Continence Nurs. 2014;41(3):249-53.
  • Arolfo S, Borgiotto C, Bosio G, Mistrangelo M, Allaix ME, Morino M. Preoperative stoma site marking: a simple practice to reduce stoma-related complications. Tech Coloproctol. 2018; 22(9):683-7.
  • Metcalf C. Stoma care: empowering patients through teaching practical skills. Br J Nurs. 1999; 8(9):593-600.
  • Burch J. Care of patients undergoing stoma formation: what the nurse needs to know. Nurs Stand. 2017; 31(41):40-5.
  • Gök AFK, Özgür I, Altunsoy M, Üçüncü MZ, Bayraktar A, Bulut MT, Keskin M. Complicated or not complicated: Stoma site marking before emergency abdominal surgery. Ulus Travma Acil Cerrahi Derg. 2019; 25(1):60-5.
  • Martins L, Tavernelli K, Sansom W, Dahl K, Claessens I, Porrett T, Andersen BD. Strategies to reduce treatment costs of peristomal skin complications. Br J Nurs. 2012-2013; 21(22):1312-5.
  • Danielsen AK. Life after stoma creation. Dan Med J. 2013; 60(10):B4732.
  • Davis JS, Svavarsdóttir MH, Pudio M, Arena R, Lee Y, Jensen MK. Factors impairing quality of life for people with an ostomy. Gastrointestinal Nursing 2011; 9(2S):14-8.
  • Martins L, Samai O, Fernández A, Urquhart M, Hansen AS. Maintaining healthy skin around an ostomy: peristomal skin disorders and self-assessment. Gastrointestinal Nursing 2011; 9(2S):9-13.
Data source: Dialnet