¿Es fácil encargarse de coordinar un Programa de Hipoacusia Infantil?

  1. BENITO-OREJAS, José Ignacio 1
  2. PONCELA-BLANCO, María 2
  3. GARCÍA-VICARIO, Fernando 3
  4. BENITO-GONZÁLEZ, Fernando 4
  5. MARTÍN-SIGÜENZA, Gerardo 5
  6. SAN ROMÁN-CARBAJO, Jesús 6
  1. 1 SACYL. Valladolid.
  2. 2 SACYL. Palencia.
  3. 3 SACYL. Burgos.
  4. 4 SACYL. Salamanca.
  5. 5 SACYL. León.
  6. 6 SACYL. Ponferrada.
Revista:
Revista ORL

ISSN: 2444-7986 2444-7986

Año de publicación: 2016

Volumen: 7

Volumen: 2

Páginas: 77-90

Tipo: Artículo

DOI: 10.14201/ORL201672.14237 DIALNET GOOGLE SCHOLAR lock_openDialnet editor

Otras publicaciones en: Revista ORL

Resumen

Hearing loss is the most prevalent sensory deficiency at birth. Even though, coordinating a program for early detection and care may seem simple tasks, they are not so when it takes responsibility for the negative impact that a delay in the identification or treatment, can cause in the linguistic and educational development of the child. With this review, we provide an overview of the commitment involved in the practice of this task. Method: We analyze functions assigned to the supervisor of a "Children's Program of Hearing Loss", which are set in the program of the Community of Castilla y León, that are a reflection of other communities and countries, because they belong to an international consensus backed by different regulatory organisms, which in Spain corresponds to the Commission for the Early Detection of Hearing Loss (CODEPEH). Results: The coordinator of a "Children's Program of Hearing Loss" should monitor the early identification of the new born with hearing impairment, ensure early diagnosis and treatment, ask for specific tests and assess the success of the intervention. This process focuses on the family as a key driver of the project. The institutional and administrative support should be at the service of this activity. Conclusions: Take over a "Children's Program of Hearing Loss" implies a global conception, which consists of establishing a preventive control of hearing health of the child, that increases the complexity of their development.

Referencias bibliográficas

  • Abdul Wahid SN, Md Daud MK, Sidek D, Abd Rahman N, Mansor S, Zakaria MN. The performance of distortion product otoacoustic emissions and automated auditory brainstem response in the same ear of the babies in neonatal unit. Int J Pediatr Otorhinolaryngol. 2012;76(9):1366-9. http://dx.doi.org/10.1016/j.ijporl.2012.06.008 -- PMid:22770594
  • American Academy of Pediatrics, Joint Committee on Infant Hearing. Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics. 2007;120(4):898-921. http://dx.doi.org/10.1542/peds.2007-2333 -- PMid:17908777
  • Baldwin SM, Gajewski BJ, Widen JE. An evaluation of the cross-check principle using visual reinforcement audiometry, otoacoustic emissions, and tympanometry. J Am Acad Audiol. 2010;21(3):187-96. http://dx.doi.org/10.3766/jaaa.21.3.7 -- PMid:20211123
  • Benito-Orejas JI, Benito-González F, Tellería-Orriols JJ. Importancia de las pruebas genéticas en la hipoacusia infantil. Rev Soc Otorrinolaringol Castilla Leon Cantab La Rioja. 2015;6(4):19-30. En: http://hdl.handle.net/10366/125187.
  • Benito-Orejas JI, Parente-Arias P, García-Carreira B. Cribado con Potenciales Evocados Auditivos del Tronco Cerebral Automatizados (PEATC-A). In: Trinidad G, Jáudenes C (coord). Sordera infantil. Del diagnóstico precoz a la inclusión educativa. Guía práctica para el abordaje multidisciplinar. Madrid. Confederación Espa-ola de Familias de Personas Sordas (FIAPAS). 2012. p.69-87. En: http://sid.usal.es/bdocus/discapacidad/26217/8-1/sordera-infantil-del-diagnostico-precoz-a-la-inclusion-educativa.aspx. [Consultado el 14/05/2016].
  • Benito-Orejas JI, Ramírez B, Morais D, Almaraz A, Fernández-Calvo JL. Comparison of two-step transient evoked otoacoustic emissions (TEOAE) and automated auditory brainstem response (AABR) for universal newborn hearing screening programs. Int J Pediatr Otorhinolaryngol. 2008;72(8):1193-201. http://dx.doi.org/10.1016/j.ijporl.2008.04.011 -- PMid:18550180
  • Benito Orejas JI, Ramírez Cano B, Morais Pérez D, Fernández-Calvo JL, Almaraz Gómez A. Resultados de aplicar durante 42 meses un protocolo universal de detección e intervención precoz de la hipoacusia en neonatos. Acta Otorrinolaringol Esp. 2008;59(3):96-101. http://dx.doi.org/10.1016/S2173-5735(08)70202-3 http://dx.doi.org/10.1016/S0001-6519(08)73274-6
  • Benito-Orejas JI, Romero-Hergueta MC. Encuesta sobre el Programa de Hipoacusia Infantil tras 5 a-os de su aplicación universal en Castilla y León. Rev Soc Otorrinolaringol Castilla Leon Cantab La Rioja. 2012;3(2):4-21. En: http://hdl.handle.net/10366/124422.
  • Benito-Orejas JI, Silva-Rico JC. Hipoacusia: identificación e intervención precoces. Pediatr Integral. 2013; XVII(5):330-342.
  • Berlin CI, Hood LJ, Morlet T, Wilensky D, Li L, Mattingly KR, et al. Multi-site diagnosis and management of 260 patients with auditory neuropathy/dys-synchrony (auditory neuropathy spectrum disorder). Int J Audiol. 2010;49(1):30-43. http://dx.doi.org/10.3109/14992020903160892 -- PMid:20053155
  • Boone RT, Bower CM, Martin PF. Failed newborn hearing screens as presentation for otitis media with effusion in the newborn population. Int J Pediatr Otorhinolaryngol. 2005;69(3):393-7. http://dx.doi.org/10.1016/j.ijporl.2004.11.006 -- PMid:15733600
  • Boudewyns A, Declau F, Van den Ende J, Van Kerschaver E, Dirckx S, Hofkens-Van den Brandt A, et al. Otitis media with effusion: an underestimated cause of hearing loss in infants. Otol Neurotol. 2011;32(5):799-804. http://dx.doi.org/10.1097/MAO.0b013e31821b0d07 -- PMid:21593700
  • Bower CM, St John R. The otolaryngologist's role in newborn hearing screening and early intervention. Otolaryngol Clin North Am. 2014;47(5):631-49. http://dx.doi.org/10.1016/j.otc.2014.06.002 -- PMid:25213275
  • Brenner DJ. Estimating cancer risks from pediatric CT: going from the qualitative to the quantitative. Pediatr Radiol. 2002;32(4):228-1; discussion 242-4.
  • Canale A, Favero E, Lacilla M, Recchia E, Schindler A, Roggero N, et al. Age at diagnosis of deaf babies: a retrospective analysis highlighting the advantage of newborn hearing screening. Int J Pediatr Otorhinolaryngol. 2006;70(7):1283-9. http://dx.doi.org/10.1016/j.ijporl.2006.01.008 -- PMid:16488484
  • Choi KY, Schimmenti LA, Jurek AM, Sharon B, Daly K, Khan C, et al. Detection of cytomegalovirus DNA in dried blood spots of Minnesota infants who do not pass newborn hearing screening. Pediatr Infect Dis J. 2009;28(12):1095-8. http://dx.doi.org/10.1097/INF.0b013e3181af6230 -- PMid:19820425
  • Clemmens CS, Guidi J, Caroff A, Cohn SJ, Brant JA, Laury AM, et al. Unilateral cochlear nerve deficiency in children. Otolaryngol Head Neck Surg. 2013;149(2):318-25. http://dx.doi.org/10.1177/0194599813487681 -- PMid:23678279
  • CODEPEH (Comisión para la detección precoz de la hipoacusia infantil). Trinidad-Ramos G, Alzina V, Jaudenes-Casaubón C, Nú-ez Batalla F, Sequí-Canet JM. Recomendaciones de la CODEPEH para 2010. Acta Otorrinolaringol Esp. 2010;61(1): 69-77.
  • Dedhia K, Kitsko D, Sabo D, Chi DH. Children with sensorineural hearing loss after passing the newborn hearing screen. JAMA Otolaryngol Head Neck Surg. 2013;139(2):119-23. http://dx.doi.org/10.1001/jamaoto.2013.1229 -- PMid:23328914
  • García-Vicario F, Navazo-Eguía AI, Benito-Orejas JI. Satisfacción de los padres con el cribado auditivo neonatal universal en Castilla y León. Rev Soc Otorrinolaringol Castilla Leon Cantab La Rioja. 2014;5(16):134-44. En: : http://hdl.handle.net/10366/124547.
  • Gulati A, Chadha SK. Neonatal hearing screening: otolaryngologist's perspective. Indian Pediatr. 2014;51(3):174-5. http://dx.doi.org/10.1007/s13312-014-0367-2 -- PMid:24736903
  • Hall, JW.; Swanepoel, DW: Objective assessment of hearing. Plural Publishing, Inc. 2010. Cap. 5; pp. 67-104.
  • Harlor AD Jr, Bower C; Committee on Practice and Ambulatory Medicine; Section on Otolaryngology-Head and Neck Surgery. Hearing assessment in infants and children: recommendations beyond neonatal screening. Pediatrics. 2009;124(4):1252-63. http://dx.doi.org/10.1542/peds.2009-1997 -- PMid:19786460
  • Ibáñez-Muñoz C, Calle-Cabanillas M.I, Pérez-Sáez J, Navazo-Eguía A.I, Clemente-García A, García-Vicario F, Sánchez-Hernández JM. Evolución de la audición en ni-os con infección congénita por citomegalovirus. Rev Soc Otorrinolaringol Castilla Leon Cantab La Rioja. 2013;4(21):159-164. En: http://hdl.handle.net/10366/124522.
  • Jerger J. Universal newborn screening for hearing loss. J Am Acad Audiol. 2009;20(1):1 p following table of contents.
  • Johnson JL, White KR, Widen JE, Gravel JS, James M, Kennalley T, et al. A multicenter evaluation of how many infants with permanent hearing loss pass a two-stage otoacoustic emissions/automated auditory brainstem response newborn hearing screening protocol. Pediatrics. 2005;116(3):663-72. http://dx.doi.org/10.1542/peds.2004-1688 -- PMid:16140706
  • Joint Committee on Infant Hearing; American Academy of Audiology; American Academy of Pediatrics; American Speech-Language-Hearing Association; Directors of Speech and Hearing Programs in State Health and Welfare Agencies. Year 2000 position statement: principles and guidelines for early hearing detection and intervention programs. Joint Committee on Infant Hearing, American Academy of Audiology, American Academy of Pediatrics, American Speech-Language-Hearing Association, and Directors of Speech and Hearing Programs in State Health and Welfare Agencies. Pediatrics. 2000;106(4):798-817. -- PMid:11015525
  • Joint Committee on Infant Hearing. Year 2007 position statement: principles and guidelines for early hearing detection and intervention programs. American Academy of Pediatrics. Pediatrics 2007;120 (4): 898-921. http://dx.doi.org/10.1542/peds.2007-2333 -- PMid:17908777
  • Junta de Castilla y León. Consejería de Sanidad. Programa de detección precoz y atención integral de la hipoacusia infantil. 2004. Pp. 78. En: http://www.saludcastillayleon.es/sanidad/cm/profesionales/tkContent%3bjsessionid=d94715b5ce5635d8536f073405190bc9ac5954cccd4.e38ObN8KbxuLci0Lc3yPaNmQc3qTe6fznA5Pp7ftolbGmkTy?pgseed=1182830900272&idContent=4424&locale=es_ES&textOnly=false. [Consultado el 14/05/2016].
  • Kohda C, Chiba N, Shimokoba K, Mizuno K, Negoro T, Nakano Y, et al. A simple smart amplification assay for the rapid detection of human cytomegalovirus in the urine of neonates. J Virol Methods. 2014;208:160-5. http://dx.doi.org/10.1016/j.jviromet.2014.07.034 -- PMid:25110117
  • Korres S, Nikolopoulos TP, Peraki EE, Tsiakou M, Karakitsou M, Apostolopoulos N, et al. Outcomes and efficacy of newborn hearing screening: strengths and weaknesses (success or failure?). Laryngoscope. 2008;118(7):1253-6. http://dx.doi.org/10.1097/MLG.0b013e31816d726c -- PMid:18401271
  • Mafong DD, Shin EJ, Lalwani AK. Use of laboratory evaluation and radiologic imaging in the diagnostic evaluation of children with sensorineural hearing loss. Laryngoscope. 2002;112(1):1-7. http://dx.doi.org/10.1097/00005537-200201000-00001 -- PMid:11802030
  • Martínez R, Benito JI, Condado MA, Morais D, Fernández Calvo JL. Resultados de aplicar durante 1 a-o un Protocolo Universal de Detección Precoz de la Hipoacusia en neonatos. Acta Otorrinolaringol Esp. 2003;54(5):309-15. http://dx.doi.org/10.1016/S0001-6519(03)78419-2
  • Martínez R, Benito JI, Condado MA, Morais D, Fernández-Calvo JL. Results of the application of the protocol for the early detection of hearing loss in high-risk neonates. An Otorrinolaringol Ibero Am. 2003;30(3):277-87. -- PMid:12918292
  • Ministerio de Sanidad, Servicios Sociales e Igualdad. 11444: ORDEN SSI/2065/2014, de 31 de octubre, por la que se modifican los anexos I, II y III del Real Decreto 1030/2006, de 15 de septiembre, por el que se establece la cartera de servicios comunes del Sistema Nacional de Salud y el procedimiento para su actualización. BOE. 6 noviembre 2014; 269,sec.I: 91369-91382. En: http://www.msssi.gob.es/profesionales/prestacionesSanitarias/CarteraDeServicios/home.htm.
  • Mohd Khairi MD, Rafidah KN, Affizal A, Normastura AR, Suzana M, Normani ZM. Anxiety of the mothers with referred baby during Universal Newborn Hearing Screening. Int J Pediatr Otorhinolaryngol. 2011;75(4):513-7. http://dx.doi.org/10.1016/j.ijporl.2011.01.009 -- PMid:21292333
  • Muñoz K, Blaiser K, Barwick K. Parent hearing aid experiences in the United States. J Am Acad Audiol. 2013;24(1):5-16. http://dx.doi.org/10.3766/jaaa.24.1.2 -- PMid:23231812
  • Núñez-Batalla F. Entrevista. FIAPAS. 2015;154:13-4. En: http://prod-plat-fiapas.geaportal.com/EPORTAL_DOCS/GENERAL/FIAPAS/DOC-cw561e3bdeb2fa7/ENTREVISTA_REVISTA_FIAPAS_154.pdf. [Consultado el 14/05/2016].
  • Núñez-Batalla F, Jáudenes-Casaubón C, Sequí-Canet JM, Vivanco-Allende A, Zubicaray-Ugarteche J. Recomendaciones CODEPEH 2014: detección precoz de la hipoacusia diferida, diagnóstico audiológico y adaptación audioprotésica y atención temprana. Acta Otorrinolaringol Esp. 2016;67(1):45-53. http://dx.doi.org/10.1016/j.otorri.2015.05.007 -- PMid:26443498
  • Núñez-Batalla F, Trinidad-Ramos G, Sequí-Canet JM, Alzina De Aguilar V, Jáudenes-Casaubón C. Risk factors for sensorineural hearing loss in children. Acta Otorrinolaringol Esp. 2012;63(5):382-90. http://dx.doi.org/10.1016/j.otoeng.2011.02.006
  • Núñez F, Jáudenes C, Sequí JM, Vivanco A, Zubicaray J, Cabanillas R. Diagnóstico etiológico de la sordera infantil: recomendaciones CODEPEH 2015. Separata. FIAPAS;155:I-XVII. En: http://bibliotecafiapas.es/inicio/index.php/book/separata-155/. [Consultado el 14/05/2016].
  • ORDEN SAN/553/2008, de 3 de abril, por la que se crea el Registro de Recién Nacidos en Castilla y León. B.O.C. y L. 71. 14 abril 2008:6813-4.
  • Pimperton H, Kennedy CR. The impact of early identification of permanent childhood hearing impairment on speech and language outcomes. Arch Dis Child. 2012;97(7):648-53. http://dx.doi.org/10.1136/archdischild-2011-301501 -- PMid:22550319
  • Schroeder L, Petrou S, Kennedy C, McCann D, Law C, Watkin PM, et al. The economic costs of congenital bilateral permanent childhood hearing impairment. Pediatrics. 2006;117(4):1101-12. http://dx.doi.org/10.1542/peds.2005-1335 -- PMid:16585304
  • Spivak L, Sokol H, Auerbach C, Gershkovich S. Newborn hearing screening follow-up: factors affecting hearing aid fitting by 6 months of age. Am J Audiol. 2009;18(1):24-33. http://dx.doi.org/10.1044/1059-0889(2008/08-0015)
  • Tattersall H, Young A. Deaf children identified through newborn hearing screening: parents' experiences of the diagnostic process. Child Care Health Dev. 2006;32(1):33-45. http://dx.doi.org/10.1111/j.1365-2214.2006.00596.x -- PMid:16398789
  • Tomblin JB, Oleson JJ, Ambrose SE, Walker E, Moeller MP. The influence of hearing aids on the speech and language development of children with hearing loss. JAMA Otolaryngol Head Neck Surg. 2014;140(5):403-9. http://dx.doi.org/10.1001/jamaoto.2014.267 -- PMid:24700303 PMCid:PMC4066968
  • Van der Ploeg CP, Lanting CI, Kauffman-de Boer MA, Uilenburg NN, de Ridder-Sluiter JG, Verkerk PH. Examination of long-lasting parental concern after false-positive results of neonatal hearing screening. Arch Dis Child. 2008;93(6):508-11. http://dx.doi.org/10.1136/adc.2007.129320 -- PMid:18218661
  • Weichbold V, Nekahm-Heis D, Welzl-Mueller K. Universal newborn hearing screening and postnatal hearing loss. Pediatrics. 2006;117(4):e631-6. http://dx.doi.org/10.1542/peds.2005-1455 -- PMid:16585279
  • White KR. Newborn hearing screening. In: Madell JR, Flexer C, editors. Pediatric audiology. Diagnosis, technology and management. New York: Thieme Medical Publisher, Inc. 2008. Pp. 31-41.
  • Windmill S, Windmill IM. The status of diagnostic testing following referral from universal newborn hearing screening. J Am Acad Audiol. 2006;17(5):367-78;quiz 379-80. http://dx.doi.org/10.3766/jaaa.17.5.6 -- PMid:16796302
  • Yoshinaga-Itano C, Sedey AL, Coulter DK, Mehl AL. Language of early- and later-identified children with hearing loss. Pediatrics. 1998;102(5):1161-71. http://dx.doi.org/10.1542/peds.102.5.1161 -- PMid:9794949