Vivencias y sentimientos de los pacientes con Parkinson

  1. Diego Durán Bermejo 1
  2. Miriam Vázquez Campo 2
  3. Yago Mouriño López 3
  1. 1 Complexo Hospitalario Universitario de Ourense, Orense, España
  2. 2 Complexo Hospitalario Universitario de Ourense, Escuela Universitaria de Enfermería (EUE) de Ourense, Universidad de Vigo, Orense, España
  3. 3 Servicio de Medicina Interna, Xerencia Integrada de Ourense, Verín e Barco de Valdeorras, España
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Journal:
Enfermería clínica

ISSN: 1130-8621

Year of publication: 2020

Volume: 30

Issue: 4

Pages: 253-259

Type: Article

DOI: 10.1016/J.ENFCLI.2019.03.002 DIALNET GOOGLE SCHOLAR

More publications in: Enfermería clínica

Abstract

Objective To discover through the patients themselves the process of coexisting with Parkinson's disease. Method Qualitative study of phenomenological approach. The sample consisted of 6 participants. The data was obtained through a semi-structured individual interview. The conversations were audio recorded, with the consent of the participants, and then transcribed to make a thematic analysis. This study was approved by the relevant Research Ethics Committee. Results From the analysis of the data, 6 categories emerged: Acceptance; Coping; Family and friends; Society and Parkinson's; Institutions and research; Future. All the subjects remembered the day of the diagnosis, and agreed that this takes too long. From that moment they began to develop adaptation and coping mechanisms that were benefited or harmed by various aspects such as: medication, present symptoms, work or mood, making family support fundamental. They expressed that society does not currently understand people with Parkinson's disease. Conclusions Parkinson's disease is largely unknown to society, which makes it difficult for those affected to accept and cope with the disease. State of mind is essential to adapt to the disease, and integrate it into daily living, while the family is an important pillar in this process

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Data source: Dialnet