Vivencias y sentimientos de los pacientes con Parkinson

  1. Diego Durán Bermejo 1
  2. Miriam Vázquez Campo 2
  3. Yago Mouriño López 3
  1. 1 Complexo Hospitalario Universitario de Ourense, Orense, España
  2. 2 Complexo Hospitalario Universitario de Ourense, Escuela Universitaria de Enfermería (EUE) de Ourense, Universidad de Vigo, Orense, España
  3. 3 Servicio de Medicina Interna, Xerencia Integrada de Ourense, Verín e Barco de Valdeorras, España
Mostrar afiliaciones +
Revista:
Enfermería clínica

ISSN: 1130-8621

Año de publicación: 2020

Volumen: 30

Número: 4

Páginas: 253-259

Tipo: Artículo

DOI: 10.1016/J.ENFCLI.2019.03.002 DIALNET GOOGLE SCHOLAR

Otras publicaciones en: Enfermería clínica

Resumen

Objective To discover through the patients themselves the process of coexisting with Parkinson's disease. Method Qualitative study of phenomenological approach. The sample consisted of 6 participants. The data was obtained through a semi-structured individual interview. The conversations were audio recorded, with the consent of the participants, and then transcribed to make a thematic analysis. This study was approved by the relevant Research Ethics Committee. Results From the analysis of the data, 6 categories emerged: Acceptance; Coping; Family and friends; Society and Parkinson's; Institutions and research; Future. All the subjects remembered the day of the diagnosis, and agreed that this takes too long. From that moment they began to develop adaptation and coping mechanisms that were benefited or harmed by various aspects such as: medication, present symptoms, work or mood, making family support fundamental. They expressed that society does not currently understand people with Parkinson's disease. Conclusions Parkinson's disease is largely unknown to society, which makes it difficult for those affected to accept and cope with the disease. State of mind is essential to adapt to the disease, and integrate it into daily living, while the family is an important pillar in this process

Referencias bibliográficas

  • I. Rodríguez-Constenla, I. Cabo-López, P. Bellas-Lamas, E. Cebrián Cognitive and neuropsychiatric disorders in Parkinson's disease Rev Neurol, 50 (Suppl 2) (2010), pp. S33-S39
  • J. Rodríguez Gómez, L. Villarraga Peña Análisis de alteraciones en el control de impulsos en los pacientes con enfermedad de parkinson del Hospital Militar Central que se encuentran o no en tratamiento con pramipexol en el primer semestre de 2012 [tesis doctoral] Universidad Militar Nueva Granada, Bogotá (2013)
  • E. Peñas, M. Gálvez Sierra, M. Marín Valero, M. Pérez-Olivares Castiñeira El libro blanco del Parkinson en España Real Patronato sobre Discapacidad, Madrid (2015)
  • L. Ambrosio, J.M. Senosiain García, M. Riverol Fernández, S. Anaut Bravo, S. Díaz de Cerio Ayesa, M.E. Ursúa Sesma, et al. Living with chronic illness in adults: A concept analysis J Clin Nurs, 24 (2015), pp. 2357-2367
  • J. Benito-León, E. Cubo, C. Coronell ANIMO. Impact of apathy on health-related quality of life in recently diagnosed Parkinson's disease: The ANIMO study Mov Disord, 27 (2012), pp. 211-218
  • E. Cubo, P. Martínez Martin, M. González, B. Frades, miembros del grupo ELEP Impact of motor and non-motor symptoms on the direct costs of Parkinson's disease Neurologia, 24 (2009), pp. 15-23
  • N.E. Edwards, K.M. Ruettiger The influence of caregiver burden on patients’ management of Parkinson's disease: Implications for rehabilitation nursing Rehabil Nurs, 27 (2002), pp. 182-186
  • S.L. Wong, H. Gilmour, P.L. Ramage-Morin Parkinson's disease: Prevalence, diagnosis and impact Health Rep, 25 (2014), pp. 10-14
  • E. Schartau, D. Tolson, V. Fleming Parkinson's disease: The effects on womanhood Nurs Stand, 17 (2003), pp. 33-39
  • V. Fleming, D. Tolson, E. Schartau Changing perceptions of womanhood: Living with Parkinson's Disease Int J Nurs Stud, 41 (2004), pp. 515-524
  • D. Kralik The quest for ordinariness: transition experienced by midlife women living with chronic illness J Adv Nurs, 39 (2002), pp. 146-154
  • D. Kralik, K. Telford, K. Price, T. Koch Women's experiences of fatigue in chronic illness J Adv Nurs, 52 (2005), pp. 372-380
  • K. Telford, D. Kralik, T. Koch Acceptance and denial: implications for peopleadapting to chronic illness: Literature review J Adv Nurs, 55 (2006), pp. 457-464
  • T. Koch, P. Jenkin, D. Kralik Chronic illness self-management: Locating the’self’ J Adv Nurs, 48 (2004), pp. 484-492
  • K. Wirdefeldt, H.O. Adami, P. Cole, D. Trichopoulos, J. Mandel Epidemiology and etiology of Parkinson's disease: A review of the evidence Eur J Epidemiol, 26 (Suppl 1) (2011), pp. S1-S58
  • A. Haahr, M. Kirkevold, E.O. Hall, K. Ostergaard Living with advanced Parkinson's disease: A constant struggle with unpredictability J Adv Nurs, 67 (2011), pp. 408-417
  • J.H. Carter, B.J. Stewart, K.S. Lyons, P.G. Archbold Do motor and nonmotor symptoms in PD patients predict caregiver strain and depression? Mov Disord, 23 (2008), pp. 1211-1216
  • R. Lazarus, S. Folkman Stress, appraisal and coping Springer, New York (1984)
  • E. Escalante Gomez La perspectiva ricoeuriana y el análisis de las narrativas Fundamentos en Humanidades, 1 (2013), pp. 175-192
  • A. Tod, F. Kennedy, A. Stocks, A. McDonnell, B. Ramaswamy, B. Wood, et al. Good-quality social care for people with Parkinson's disease: A qualitative study BMJ Open, 6 (2016), p. e006813
  • M. Navarta-Sánchez, N. Caparrós, M. Ursúa Sesma, S. Díaz de Cerio Ayesa, M. Riverol, M. Portillo Estrategias psicosociales para fortalecer el afrontamiento de la enfermedad de Parkinson: perspectiva de pacientes, familiares y profesionales sociosanitarios Atención Primaria, 49 (2017), pp. 214-223
  • S. Jonasson, M. Nilsson, J. Lexell, G. Carlsson Experiences of fear of falling in persons with Parkinson's disease–a qualitative study BMC Geriatrics, 18 (2018)
  • M. Portillo Vega, J. Senosiain García, M. Arantzamendi Solabarrieta, A. Zaragoza Salcedo, M. Navarta Sánchez, S. de Cerio Ayesa, et al. Proyecto ReNACE. Convivencia de pacientes y familiares con la enfermedad de Parkinson: resultados preliminares de la Fase I Rev Cient Soc Esp Enferm Neurol, 36 (2012), pp. 31-38
  • A. Zaragoza Salcedo, J. Senosiain García, M. Riverol Fernández, S. Anaut Bravo, S. Díaz de Cerio Ayesa, M. Ursúa Sesma, et al. Elementos clave en el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares cuidadores An Sist Sanit Navar, 37 (2014), pp. 69-80
  • M. Arroyo Menéndez, L. Finkel Dependencia e impacto social de la enfermedad de Parkinson Revista Española de Discapacidad, 1 (2013), pp. 25-49
  • M.G. Weiss, J. Ramakrishna, D. Somma Health-related stigma: Rethinking concepts and interventions Psychol Health Med, 11 (2006), pp. 277-287
  • A.L. Stanton, T.A. Revenson, H. Tennen Health psychology: Psychological adjustment to chronic disease Annu Rev Psychol, 58 (2007), pp. 565-592
  • D. Pérez Saavedra, F. Marichal García Influencia de conciencia de estigma en la calidad de vida, autoestima y la ansiedad y la depresión en personas con Parkinson [trabajo de fin de grado] Facultad de Ciencias Políticas y de la Comunicación. Universidad de la Laguna, Canarias (2016)
  • L. Ambrosio, M.C. Portillo, C. Rodríguez-Blázquez, A. Carvajal, P. Martínez-Martín Estudio piloto sobre la escala de convivencia con un proceso crónico en pacientes con enfermedad de Parkinson Rev Neurol, 61 (2015), pp. 447-453
  • L. Ambrosio, M.C. Portillo Instrumentos para valorar la convivencia del paciente con un proceso crónico: una revisión sistemática Enferm Clin, 28 (2018), pp. 220-229
Fuente de los datos: Dialnet